Jenna Gestetner, a 21-year-old from Los Angeles, California, faces a unique challenge: living with Mast Cell Activation Syndrome (MCAS), a condition that severely restricts her diet to just 13 foods due to severe allergic reactions.
MCAS is characterized by symptoms akin to anaphylaxis, including hives, swelling, low blood pressure, difficulty breathing, and intense gastrointestinal issues, as described by the American Academy of Allergy Asthma & Immunology.
Gestetner’s journey with health issues began early in life, often being dismissed as being “sensitive” to various stimuli. However, as her symptoms intensified around the age of 12, she started noticing a correlation between certain foods and worsening health issues, such as pain, nausea, and fatigue.
Over the years, extensive testing led to the diagnosis of MCAS, prompting Gestetner to drastically reduce her diet to a mere 13 safe foods. Her current diet includes staples like white fish, turkey, green beans, and select fruits like grapes and raspberries, carefully avoiding triggers like rice, pasta, and red meat.
Despite these dietary restrictions, Gestetner, a student at the University of Southern California, manages to maintain a balanced intake, focusing on essential nutrients and sufficient calorie intake. However, dining out remains a significant challenge, as she meticulously checks restaurant menus and communicates with chefs to ensure her meals are prepared safely.
Despite the daily challenges, Gestetner remains positive, sharing her experiences on social media to inspire others facing similar conditions. She creates content showcasing recipes and offering encouragement to her audience, fostering a supportive community.
Gestetner’s resilience and determination highlight the complexities of living with MCAS while striving to maintain a fulfilling and healthy lifestyle.
